Position type: Patient Partner
Number of positions available: 2
Organization: Royal University Hospital, Department of Medical Imaging
Role overview: Totally implanted venous access devices (TIVADs) are ports implanted on a patient's arm for ease of venous access in a patient who may require extended intravenous therapy.
Although symptomatic venous clots is known with the use of arm ports, the rate of asymptomatic venous clots has not been elucidated in prior research. This is important to understand because venous clots can travel to our lungs, resulting in significant risk of morbidity and mortality for the patient using the arm port. Our study aims to find out how often asymptomatic venous clots occur and when do they tend to occur by assessing for venous clots with a month 1 and month 3 ultrasound of the arm after arm port insertion.
Study participants are cancer patients who require arm ports for chemotherapy and are approached when they present for arm port insertion in Interventional Radiology at the Royal University Hospital, Department of Imaging.
The Patient Partner will be tasked with designing a plan for patient engagement and to create research study information material (such as pamphlets, cards, videos, etc.) that will be given or shown to potential study participants in Interventional Radiology.
Patient information materials aim to use patient centered language to present complex concepts in easily understandable formats and/or illustrations, so that study participants can best understand the study premise and how their involvement will benefit future patients prior to making an informed consent to be involved in the study.
Knowledge, experience, skills required: Preferably, an interested Patient Partner has lived experience as an oncology patient or caregiver. Basic computer skills are preferred (Word, PowerPoint, etc.), experience with graphic design or video making/editing is a bonus, but not required.
Time commitment: Time commitment is flexible. Approximately 2 hours per week and minimum 2 months commitment is required.
Location: Meetings will take place over video conference, and in person (place to be determined) when the situation allows.
What you can expect from staff: Constant communication and support will be provided by the research team.
Supports available to participate: Honoraria and Expense Reimbursement
Submission of interest deadline: Ongoing, ASAP
Contact name: Lotus Yang
Email address: Luhe.firstname.lastname@example.org
Phone number: 514-513-7266