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On the 7th of April 2007 my life changed forever in so many ways. It was the day when my beautiful baby sister Shanei was born. Unfortunately due to doctor’s negligence she was diagnosed with Spastic Dyskenetic Quadriplegic Cerebral Palsy.
I was only 11 when she was born, so I didn't really know what it meant and all I thought was "wheelchair?".
I was forced to grow up and take on responsibilities that no normal person my age had to.
But I was so happy, I had a new baby sister and she was gorgeous! As she’s getting older she’s surprising us every day. She’s even taught us a new language (eye gaze).
Before my sister was born I didn’t know much about disabilities, all I thought it was is some people can’t feel their legs so they have to use a wheelchair. But no it’s much more complex than that, it’s opened my mind to all the different varieties of different disabilities.
Whenever we have an outing, without a doubt we will at least get one person staring, sometimes it looks like people are staring at her in disgust, or looking at her like she’s an invalid. It enrages me so much but I think of how my sister would feel. It’s very sad really.
It’s a very tiring job looking after a person whom suffers from a disability. It drains you, but the thing that keeps me going is knowing that she desperately wishes she could do all of this herself. She tries so hard. Every now and then I’ll have a breakdown and cry about everything that’s going on. It’s like I’m still not over the fact that this has happened to her.
I believe that she was given to us for a reason. God knew we were capable of caring for someone that needs so much extra attention. He knew it would also strengthen us & bind us together more as a family. She’s the core of our family; without her the house feels cold & un-homely, her smile can brighten up the darkest day, she’s the most loving little girl, I don’t know what I’d do without her.
The wheelchair hear symbol to me means that all people with disabilities are people too , they all have feelings and a heart , they think like we do & they need as much loving and caring as any person does. I don’t believe in “Acceptance day” I believe they should be accepted every day. They’re human beings, were human being? No one should be able to judge. Although I think our family spoil my sister because we love her too much. But why shouldn’t we spoil her? Of course there’s boundaries & discipline. But I want to make her happy, and try to give her the best life possible. I have a 3E tattoo, but it’s not in the shape of a love heart it’s like the normal disability sign but with her name written as the chair. And I love it.
I was only 11 when she was born, so I didn't really know what it meant and all I thought was "wheelchair?".
I was forced to grow up and take on responsibilities that no normal person my age had to.
But I was so happy, I had a new baby sister and she was gorgeous! As she’s getting older she’s surprising us every day. She’s even taught us a new language (eye gaze).
Before my sister was born I didn’t know much about disabilities, all I thought it was is some people can’t feel their legs so they have to use a wheelchair. But no it’s much more complex than that, it’s opened my mind to all the different varieties of different disabilities.
Whenever we have an outing, without a doubt we will at least get one person staring, sometimes it looks like people are staring at her in disgust, or looking at her like she’s an invalid. It enrages me so much but I think of how my sister would feel. It’s very sad really.
It’s a very tiring job looking after a person whom suffers from a disability. It drains you, but the thing that keeps me going is knowing that she desperately wishes she could do all of this herself. She tries so hard. Every now and then I’ll have a breakdown and cry about everything that’s going on. It’s like I’m still not over the fact that this has happened to her.
I believe that she was given to us for a reason. God knew we were capable of caring for someone that needs so much extra attention. He knew it would also strengthen us & bind us together more as a family. She’s the core of our family; without her the house feels cold & un-homely, her smile can brighten up the darkest day, she’s the most loving little girl, I don’t know what I’d do without her.
The wheelchair hear symbol to me means that all people with disabilities are people too , they all have feelings and a heart , they think like we do & they need as much loving and caring as any person does. I don’t believe in “Acceptance day” I believe they should be accepted every day. They’re human beings, were human being? No one should be able to judge. Although I think our family spoil my sister because we love her too much. But why shouldn’t we spoil her? Of course there’s boundaries & discipline. But I want to make her happy, and try to give her the best life possible. I have a 3E tattoo, but it’s not in the shape of a love heart it’s like the normal disability sign but with her name written as the chair. And I love it.
