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The wheelchair heart symbol is very important to me. It has been a long prosess for me to accept my new life in a wheelchair, and slowly I started to be more and more confident, and the symbol helped me with that. I bought a shirt and a hoodie and I wore it with pride. By using those clothes I got more used to the fact that I had a disability; that I was in a wheelchair.
I got paralyzed waist down when I was 16. Humor is one of my strongest qualities, and one of the most important weapons to me in this fight against a serious illness. And by wearing my "That's how I roll" hoodie I got the opportunity to show everyone that I embraced my new life and that I do it with style and laughter - typical me!
It is important to spread a positive image of disability, because others must not forget that we are still people. I'm still me; the funny, silly, creative, laughing, smiling, positive girl that can cry and be honest about that this is one hell of a fight and that I suffer - the girl who loves to sing and used to be an actress, who loves musicals, the theater, stars, wind and soap bubbles. I'm still me, and I myself need that reminder when the storm hits too hard. With the symbol I learn to love myself and who I am. I am proud of everything I've managed to do despite everything. And I want the world to know, and I want to educate them on my world.
My disability has progressed to the worse, and status epilepticus made things serious in May 2013 and I ended in the ICU in a medical coma. I lost more function and my disability is now neck down. I can't sit, nor can I hold my own head. This is an even tougher process and I have to accept this new life all over again. I am trying my best to wrap my head around it all, and I cling to the symbol for hope, love and pride. I have lost so much, and it sometimes feels like I've lost myself. But I haven't. My body may have changed, and I have yet another perspective on life and even more wisdom, but I am still here. And the symbol is my friend and support on this journey. I love myself, I am proud for overcoming this, for having survived, and I have hope. My family is proud of me and wears the symbol with me. And seeing them in a proud shirt makes me so happy and it makes me tear up. Because I have the most amazing supporters by my side who helps fulfill the 3 E's: embrace, educate, empower.
And that is why I love 3E Love.
I got paralyzed waist down when I was 16. Humor is one of my strongest qualities, and one of the most important weapons to me in this fight against a serious illness. And by wearing my "That's how I roll" hoodie I got the opportunity to show everyone that I embraced my new life and that I do it with style and laughter - typical me!
It is important to spread a positive image of disability, because others must not forget that we are still people. I'm still me; the funny, silly, creative, laughing, smiling, positive girl that can cry and be honest about that this is one hell of a fight and that I suffer - the girl who loves to sing and used to be an actress, who loves musicals, the theater, stars, wind and soap bubbles. I'm still me, and I myself need that reminder when the storm hits too hard. With the symbol I learn to love myself and who I am. I am proud of everything I've managed to do despite everything. And I want the world to know, and I want to educate them on my world.
My disability has progressed to the worse, and status epilepticus made things serious in May 2013 and I ended in the ICU in a medical coma. I lost more function and my disability is now neck down. I can't sit, nor can I hold my own head. This is an even tougher process and I have to accept this new life all over again. I am trying my best to wrap my head around it all, and I cling to the symbol for hope, love and pride. I have lost so much, and it sometimes feels like I've lost myself. But I haven't. My body may have changed, and I have yet another perspective on life and even more wisdom, but I am still here. And the symbol is my friend and support on this journey. I love myself, I am proud for overcoming this, for having survived, and I have hope. My family is proud of me and wears the symbol with me. And seeing them in a proud shirt makes me so happy and it makes me tear up. Because I have the most amazing supporters by my side who helps fulfill the 3 E's: embrace, educate, empower.
And that is why I love 3E Love.
